WILLIAM DONALD SCHAEFER, Governor Ch. 560

(8)  Hypospadias;

(9)  Reduction deformity - upper limb;

(10)  Reduction deformity - lower limb;

(11)  Congenital dislocation of the hip; AND and

(12)  Down's syndrome. ; AND.

(13) ANY OTHER SIGNIFICANT BIRTH DEFECT RECOGNIZABLE
AT BIRTH.

(b)  (1) A hospital shall make a report on each child who is
born live or stillborn in the hospital and has a sentinel birth
defect. If a child is born outside the hospital, the person
filling out the birth certificate shall make a report under this
section.

(2)  The Secretary shall appoint a committee of
physicians, hospital representatives and officials from the
Department to determine the information required under paragraph
(1) of this subsection.

(3)  Each month the hospital shall submit the reports
for that month[, identified by hospital case number only,] to the
Department.

(c)  (1) The hospital [may not] SHALL disclose the identity
of the child WITH A BIRTH DEFECT to the [Department unless]
SECRETARY SO THAT THE SECRETARY MAY:

(i) [The Department shows a] USE THE
INFORMATION TO PROTECT THE public health [need for individual
identity]; OR

(ii) [The hospital obtains written consent of
the parent or guardian of the child; and

(iii) The Department assures that the identity
of the child will not be released without the written consent of
the parent or guardian] PROVIDE THE PARENTS WITH INFORMATION ON
SENTINEL BIRTH DEFECTS AND PUBLIC AND PRIVATE SERVICES AVAILABLE
IN ACCORDANCE WITH PARAGRAPHS (1) AND (4) OF SUBSECTION (D) OF
THIS SECTION.

(2) If the Department shows a need for the individual
identity of children without sentinel birth defects to conduct a
case-control investigation, [paragraph (l)(ii) and (iii) of this
subsection applies] THE HOSPITAL SHALL OBTAIN THE WRITTEN CONSENT
OF THE PARENT OR GUARDIAN OF THE CHILD TO DISCLOSE THE CHILD'S
NAME TO THE SECRETARY.

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