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Martin O'Malley, Governor
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Ch. 81
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CHAPTER 81
(House Bill 797)
AN ACT concerning
Study of Health Care Services for Children with Life-Threatening Medical
Conditions
FOR the purpose of requiring the State Advisory Council on Quality Care at the End
of Life and the Maryland Health Care Commission to jointly undertake a
certain study relating to services for children with life—threatening medical
conditions; requiring the Council and the Commission to report the effect of
certain programs that provide assistance for children with life—threatening
medical conditions, analyze the impact of certain programs in other states,
consult with certain persons, and make certain recommendations; requiring the
Council and the Commission to report to the Governor and the General
Assembly on or before a certain date; and generally relating to the study of
health care services for children with life-threatening medical conditions.
SECTION 1. BE IT ENACTED BY THE GENERAL ASSEMBLY OF
MARYLAND, That:
(a) The State Advisory Council on Quality Care at the End of Life and the
Maryland Health Care Commission shall jointly study the current services and
potential care delivery alternatives available for the care of children with
life-threatening medical conditions.
(b) As part of the study, the Council and the Commission shall:
(1) Describe the extent to which, under the Maryland Medical
Assistance Program and privately funded health insurance or similar benefits,
children who are diagnosed with a life-threatening medical condition are currently
able to receive appropriate and timely palliative care services related to the symptoms
of the condition, the side effects from treatment, and the psychological, social, and
spiritual problems resulting from the condition or treatment;
(2) Analyze the impact in states that adopted the Children's Hospice
International Program for All-inclusive Care for Children and their Families ("CHI
PACC") or other palliative care demonstration projects, including whether a CHI
PACC program results in the reallocation of resources for more effective care within
the parameters of overall budgetary neutrality;
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- 943 -
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