2816

LAWS OF MARYLAND

Ch. 740

(ii) Where appropriate, experts in the medical,
psychological, ethical, social, and economic effects of programs
for the detection and management of hereditary AND CONGENITAL
disorders; AND

(III) THE COMMISSION.

(2) Before the [Commission] DEPARTMENT adopts a rule,
regulation, or standard, the [Commission] DEPARTMENT shall
consider:

(i) The incidence of each hereditary OR
CONGENITAL disorder; and

(ii) The cost of detection and management of
each hereditary OR CONGENITAL disorder.

(c)  (1) The rules, regulations, and standards of the
[Commission] DEPARTMENT shall require the [Commission] DEPARTMENT
and each person who conducts a hereditary AND CONGENITAL
[disorder] DISORDERS program to keep in code and treat as a
confidential medical record all information that is gathered in
the program and identifies an individual. However, this
requirement does not prevent the disclosure of information if the
individual or, if the individual is a minor or disabled person, a
parent or guardian of the person:

(i) Is informed of the scope of information to
be released and the purpose of the release; and

(ii) Consents to the release.

(2) The rules, regulations, and standards of the
[Commission] DEPARTMENT shall provide that, subject to the
restrictions on disclosure of confidential information,
information on the operation of a hereditary AND CONGENITAL
[disorder] DISORDERS program shall be open and freely available
to the public.

(d)  The rules, regulations, and standards of the
[Commission] DEPARTMENT shall provide that procedures for a
hereditary AND CONGENITAL [disorder] DISORDERS program shall:

(1)  Be accurate;

(2)  Provide maximum information;

(3)  Be set forth clearly; and

(4)  Be reviewed regularly.

(e) The rules, regulations, and standards of the
[Commission] DEPARTMENT shall: