HARRY HUGHES, Governor

683

In item (2) of this section, the reference to
"hereditary disorder programs" is substituted for
"programs regulated by the Commission", for
clarity.

The only other changes are in style.

Defined terms: "Commission" § 13-101
"Hereditary disorder" § 13-101

13-109. RULES, REGULATIONS, AND STANDARDS.

(A)  IN GENERAL.

SUBJECT TO THE REQUIREMENTS OF THIS SECTION, THE
COMMISSION MAY ADOPT RULES, REGULATIONS, AND STANDARDS FOR
THE DETECTION AND MANAGEMENT OF HEREDITARY DISORDERS.

(B)  CONSULTATIONS AND CONSIDERATIONS.

(1)  BEFORE THE COMMISSION ADOPTS A RULE,
REGULATION, OR STANDARD, THE COMMISSION SHALL CONSULT:

(I)  THE PUBLIC, ESPECIALLY COMMUNITIES AND
GROUPS WHO PARTICULARLY ARE AFFECTED BY HEREDITARY DISORDER
PROGRAMS; AND

(II)  WHERE APPROPRIATE, EXPERTS IN THE
MEDICAL, PSYCHOLOGICAL, ETHICAL, SOCIAL, AND ECONOMIC
EFFECTS OF PROGRAMS FOR THE DETECTION AND MANAGEMENT OF
HEREDITARY DISORDERS.

(2)  BEFORE THE COMMISSION ADOPTS A RULE,
REGULATION, OR STANDARD, THE COMMISSION SHALL CONSIDER:

(I)  THE INCIDENCE OF EACH HEREDITARY
DISORDER; AND

(II)  THE COST OF DETECTION AND MANAGEMENT
OF EACH HEREDITARY DISORDER.

(C)  MINIMUM STANDARDS -- ACCESS TO INFORMATION.

(1) THE RULES, REGULATIONS, AND STANDARDS OF THE
COMMISSION SHALL REQUIRE THE COMMISSION AND EACH PERSON WHO
CONDUCTS A HEREDITARY DISORDER PROGRAM TO KEEP IN CODE AND
TREAT AS A CONFIDENTIAL MEDICAL RECORD ALL INFORMATION THAT
IS GATHERED IN THE PROGRAM AND IDENTIFIES AN INDIVIDUAL.
HOWEVER, THIS REQUIREMENT DOES NOT PREVENT THE DISCLOSURE OF
INFORMATION IF THE INDIVIDUAL OR, IF THE INDIVIDUAL IS A
MINOR OR DISABLED PERSON, A PARENT OR GUARDIAN OF THE
PERSON:

(I) IS INFORMED OF THE SCOPE OF