Ch. 695                            MARVIN MANDEL, Governor                                 1457

(m) The Secretary is authorized to submit proposals to the federal government
of the United States for programs he deems appropriate to implement his
statewide plan.

(n) The Secretary shall submit to the legislature on an annual basis beginning
January 1 following July 1, 1972, and on each January 1 thereafter, a report
summarizing the activities in the State in regard to sickle cell anemia. The report
may be part of a larger report on other State problems submitted to the legislature
by the Secretary. Also, the Secretary shall submit to the Governor and the
legislature any recommendations which he deems necessary regarding problems of
sickle cell anemia.

(o)  Participation in any program under this section shall be wholly voluntary.

(p) All information obtained from an individual and all specimens from an
individual shall be held as a confidential medical record except for:

(1)   Information which the individual or his legal guardian consents to be
released; or

(2)  Statistical data compiled without reference to the identity of any individual.

(q) And be it further enacted that this section shall be known as the Sickle Cell
Anemia Information and Prevention Act of 1972.]

[[[38A.

When a birth occurs in an institution the person in charge of the institution or
his designated representative, or in the event that a birth occurs outside an
institution, the person required to prepare and file the certificate of birth pursuant
to § 7 of this article, shall cause to have administered to every such newborn child
a test for phenylketonuria in accordance with rules and regulations prescribed by
the State Board of Health and Mental Hygiene. In the event the newborn infant
leaves or is discharged from the institution and it has not been possible to secure a
satisfactory screening test, the person in charge of the institution or his designated
representative shall notify in writing the parents advising them to have
administered to such infant a test for phenylketonuria by the private physician or
local health department, with a copy of the letter being sent to the private
physician and local health department. It shall further be the responsibility of the
person in charge of the institution or his designated representative to determine
that a satisfactory test has been subsequently performed. The test and the
recording of the results of the test shall be performed at such times and in such
manner as the Board may direct. This requirement shall not apply to any child
whose parent or parents object to the administration of the test on the grounds
that the same would violate their religious beliefs.]]]

Article 62
[6A.

In a manner prescribed by the Secretary of Health and Mental Hygiene each
applicant for a marriage license in this State shall be informed at the time of the
application of the existence of the disease known as sickle cell anemia. This
information shall comply with the provisions of the section concerning sickle cell
anemia in Article 43.]

SECTION 2. AND BE IT FURTHER ENACTED, That this Act shall take
effect July 1, 1973.